UAB is Founding Member of Global Sarcoidosis Alliance

Mar 13, 2023 at 08:03 pm by kbarrettalley

The University of Alabama at Birmingham Marnix E. Heersink School of Medicine’s Multidisciplinary Sarcoidosis Clinic has joined the Foundation for Sarcoidosis Research as a founding member in their Global Sarcoidosis Alliance.

This new network of specialty clinics in the United States and globally creates a network for patient and clinician education, innovates sharing of information to advance new therapies for treatment of sarcoidosis, and creates collaborative referral networks to connect patients with complex sarcoidosis with specialists familiar with their disease.

Sarcoidosis is an inflammatory disease characterized by the formation of granulomas in one or more organs of the body. When left unchecked, chronic inflammation caused by granulomas can lead to fibrosis. This disorder affects the lungs in approximately 90 percent of cases, but it can affect other organs. Despite increasing advances in research, sarcoidosis remains difficult to diagnose, with limited treatment options and no known cure.

Disease presentation and severity vary widely among patients. In some cases, the disease goes away on its own. In others, the disease may not progress clinically, but individuals will still suffer from some symptoms that challenge their quality of life. The rest of patients — up to a third of people diagnosed with the disease — will require long-term treatment.

It is estimated that the prevalence of sarcoidosis in the United States ranges from 150,000 to 200,000, with an estimated 1.2 million individuals worldwide.

“We are excited to contribute to this new alliance and push the margin forward in understanding and eventually curing sarcoidosis,” said Joseph Barney, MD, professor in the UAB Division of Pulmonary, Allergy and Critical Care Medicine and director of UAB’s Multidisciplinary Sarcoidosis Clinic.

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